Tuesday, June 19, 2012

PLANS?! NO TIME FOR THOSE. CONSTANTLY CHANGING ANYWAY

We're HOME! Not for long, 3.5 days, but that's 3.5 days we're NOT in the hospital. Here's a summary of our crazy day yesterday.

The PLAN was to get discharged right after morning rounds, around 10:00/10:30. Guess what, that didn't happen. We waited, and waited. I kept my cool, though, really I did, for an hour or so. I told my parents, they have 15 minutes to get those discharge papers in here, or I swear we're walking out the damn door AMA. I think they listen to us in those rooms, because 2 minutes later our nurse comes in and says, got your papers! Then we had to wait on transport, new hospital policy. Huh?! That wasn't part of my PLAN. Long story short, we got a much later start than I had originally PLANNED. I wouldn't have minded so much except peeps from the new nursing agency were coming over at 3:00 to start that process. Got home, got Colby inside and put him in his bed, and knock, knock, the nursing agency was here early. That wasn't the PLAN at all!! The PLAN was to get Colby home, unpack the van, make his food and feed him/change him before the nursing agency got there. Okay, new PLAN. Dad had to unload the van by himself while Colby and I met new nursing agency person. While she's doing paperwork, I go to make Colby's food. No baby food. Well crap! Hey Dad, can you run to Kroger and get Colby some baby food so I can make his food for the day? Sure. You see how this is going. Eventually things calmed down. Colby got fed, got his cough treatment. Nursing agency got the info they needed. My stepdad came over and brought me a load of laundry they did for us, some supplies from the hospital I had sent home a week or so ago, and the best dang pulled pork I've ever had. Not sure what he did to it, but man it was good. He even made homemade BBQ and put that on the side. And brought buns. No, I'm not spoiled at all, no way. Spent the rest of the day settling in, unpacking supplies. Was right in the middle of changing Colby last night. Apparently he wasn't finished because he started peeing on everything, including me. Go ahead, chuckle, laugh, giggle, snort with delight at my expense. I can handle it. Hadn't PLANNED to change all his sheets, pads and blankets last night, but ended up doing it anyway, eh?

What are our PLANS today? Very little. Only thing I really want to do is keep Colby on schedule. So far, so good. Turned off his feeding at 7:00. Gave him his meds at 8:00. Getting ready to do cough treatment at 9:00. Amber is coming over later so we can do some programming on Colby's eye gaze. We need to give him some choices so he can pick out the theme he wants for his upcoming 10th birthday party! Anything else (unpacking, organizing, phone calls, rest, cleaning, etc) is just a bonus.

Off to get our Tuesday AT HOME started! Thanks for checking in on us. You can go back to your regularly scheduled PLANS now. Hope your PLANS go as PLANNED. If not, just do as we do and make new PLANS along the way. It's more fun that way!

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