Today has gone MUCH better than yesterday, thank you very much. After rounds ENT came up and they were able to get Colby's original size trach (5.5) back in, easy peasy. No one can really say what the problem was yesterday. Now I totally get why you need to do some trach changes while still in the hospital. If that chaos had to happen, I'm thankful it was in an environment where I had lots of help. Gee, I'm so doubly excited to do his next trach change now, NOT! TDB, it has to be done. So, using one of my famous (or infamous lines) just suck it up and do it! We got Colby up in his chair today for about 1.5 hours. Took him outside to the roof garden, and he spent about 45 minutes of that OFF the vent. As my BFF Beth would say, Colby is a stud!
And there you have it, the summary of our day so far. I'm getting ready to go for a walk before having supper at Ronnie Donnie (RD). Mom is with Colby right now. I think she'll stay with Colby tonight and I'll stay at RD. Now that all that craziness from yesterday has subsided, I think he's just fine. The people in the room next to us here at RD are from Macedonia. Like I said, can you imagine travelling that far to get your child the medical treatment they needed? And trust me, their English ain't no good neither, haha. I've been catching up with my Romanian friend, too. His son is doing quite well, although they still have he thinks another year or so to go for Benji's treatment. Again, I simply can't imagine. I about lose my marbles after 30 days.
Today marks 2 weeks we've been here, tomorrow starts week #3. Overall I'm very pleased with how everything has played out. Colby looks fabulous. Besides a couple snafoos, he has done most excellent with this whole trach experience. And let's face it, we wouldn't be us if we didn't have snafoos, that's just not how we roll, haha. Finally got his RT to losen up a little bit. He's been shy and quiet the last few times he's been with Colby. You don't that won't fly around me. Then found out he went to college in Louisville, so we finally had something to talk about and now he'll talk to us while doing Colby's cough treatment instead of standing there like a bump on a log.
Very fortunate to have my parents with us up here. Sometimes I think, I just need everyone to leave Colby and me the hell alone. Go away now, please. But seriously, where would I be without them? Stuck in that tiny hospital room by myself with Colby, never able to leave. Never able to go for a walk or spend the night at RD. I would be completely nuts. If I step back and look in, this stay really isn't that bad (so far). The day of Colby's surgery while we were in the waiting room, I had my dad on my left and my mom and stepdad on my right. Colby's surgery was being done by one of the best ENT doctors in the country at one of the best hospitals. Really, what more could I ask for? That's how I'm able to do what I do for Colby. My family and friends mean so much to me. They've stuck with us through good and bad over the years and PLEASE KNOW WE LOVE YOU AND APPRECIATE YOU SO VERY MUCH. Okay, gotta get my walk in before supper is served. Are you all still dropping your change in the Ronnie Donnie House buckets when you're picking up your Big Macs and McGriddles? Hope so. Ronald McDonald House is a wonderful organization that helps who knows how many families with sick children from all over the world. I know the difference they've made in our lives and we only live 2 hours away. This place has been a blessing for sure!
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