Well, things aren't too bad around here currently. That's a nice change of pace, huh? Let me feel you in on all things Super Mama and sweet boy Colby:
Nursing is going well. I really like the 2 nurses Maxim has sent to care for Colby. They are dependable. Both have lots of experience. Both, so far, have been very professional. I like, like and like! Of course the nursing agency is having trouble filling in the weekend shifts; I pretty much saw that coming. But that's okay, I'll just stay on the scheduler until he finds us someone. Persistence, squeaky wheel, being a bitch, whatever it takes.
Colby and I had a very low-key weekend. As in, I didn't even bother to bathe yesterday haha. I did get Colby up in his chair both days and put the eye gaze in front of him. He did explore on it, and that's all I'm asking of him right now. Just give it a try. Today, not so much, but I don't think he was feeling well. His nurse and I got him up in his chair, then I set up the eye gaze. Colby kept saying "more stop, please stop, I more stop, etc" as in he didn't want to do it. Okay, no prob, I've had many friends tell me give the kid what he wants. Took the eye gaze away and then he had a little choking incident. Oxygen dropped to the 70s, but we gave him 2 sets of a cough treatment and then he was fine. So, I guess he really was telling us something was wrong and that he couldn't do eye gaze. Saturday night I did go out. Yes, out, in public, where I had to wear something without elastic, run a comb through my hair, socialize with adults, the whole bit. I had an overnight nurse until 4:30 a.m. and I thought yeah baby, I could really tie one on if I wanted. Well, apparently I didn't want, because I left at 8:45 and was home at 12:30. But I still had a great time! Always great getting together with Henryville peeps.
Did my 2nd at-home trach change today. Easy peasy, no problems, smiley face, 2 thumbs up. Today was one of those got a lot done, I feel like maybe I'll hold on to my sanity after all kind of days. Colby's nurse got here at 8:00 and I decided to go walking. Just went 2 miles, but 2 is better than 0, right? My shins will hate me tomorrow. We also gave Colby a bath. Then Colby's PT and our "wheelchair guy" Dennis came over at 4:30. We started the arduous task of planning out a new power chair for Colby. OMG, there are so many things to consider! The right foot plate, the right head support, whether we do or don't need this or that feature, a vent tray, what do I like about the current chair, what do I not like. They were here for about 2 hours and by the time they left, my brain hurt. I'm going to let Colby choose the color, there are 6 choices. I'm going to put them on his eye gaze and he'll decide. He's old enough to have a say. Whatever he chooses is fine, doesn't matter to me.
If you live locally and want to do something FUN tomorrow night, come to the Sellersburg Moose Lodge. They are so thoughtful and generous to have a benefit for us. Here's the info: Tuesday, July 17, 2012, 7:00 p.m. This fundraiser is a comedy night featuring Mike Armstrong. He is an ex-cop, has been on the Bob and Tom Show. I hear he's pretty darn good/funny. We can all use some good chuckles, right? Tickets are $10.00 per person. All donations will be used for Colby's medical needs and handicap accessibility needs, i.e. we're looking at getting another van very soon. Please help spread the word to anyone who you think may be interested.
Colby is over there on the couch jabbering away. Love it!! Time to get his 8:00 p.m. feeding and meds done. Hope the rest of our week goes as well as our Monday has!
So glad things are looking up and that Colby is doing well with the trach! It's great to hear you have some time for yourself too... we all need that. Matt and I actually feel comfortable enough to leave each other alone with Chase and go workout now... something we would never do before the trach, since emergencies were always easier with 2 people. It's nice knowing we have quick access to Chase's airway and not living so paranoid anymore. :)
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