INCOMPETENCE!! ENOUGH IS ENOUGH

Not only could I write a paragraph or blog entry about it, I could write a freakin' book on it! Anyone who has spoken with me lately knows how incredibly frustrated I've been trying to get things done for Colby. It's been like this ever since we got home from the hospital. Now maybe, just maybe, things are looking up, just a little.

Ever since Colby went to the TCC after trach surgery, around Memorial Day, the process of getting a home IPV machine was started. And it has gone on, and on, and on. I've made phone calls. I've sent e-mails. I literally cried on the phone with the chick from Apria, asking her how I could help move the process along. Talked to her today, again, and she tells me she now has the information she needs to submit to insurance! Whaaaat? You mean you had communication with Cincinnati Children's and they sent the right info and you got the right info and now you're going to forward that info to insurance and Medicaid?! There is a God. Of course insurance can totally deny the IPV, probably will, but we can appeal. I'm NOT giving up until Colby has that machine. It'll take the place of the shaky vest, which he hates, and his nebulizer. I think it's much better for airway clearance, especially now that Colby has a trach. So we'll see how it goes. IPV paperwork done and forwarded to Apria, check.

Colby's pediatrician called today. Well, his nurse did. She is simply fantastic! Always professional, always reliable. I had filled out Colby's school papers, all 11 pages of them, then had to forward some of them for a doctor's signature. The nurse called saying they were ready to be picked up. Colby's school papers signed and ready to go to Churchill Park, check.

I called the nursing agency the other day saying look peeps, you told me Colby is approved for 16 hours of nursing a day. I counted it up and they didn't even have half the shifts filled for the month. Not that I want someone "up in here" all the time, but I really could use the extra help right now. Especially week after next when I'm scheduled to work all week while my boss recovers from surgery. Yep, you saw correctly, I'm slowly making my way back to work. Worked a few hours last week, worked today. Then probably 1 or 2 days next week, then for a whole week! Yikes, can I handle it, IDK! Haven't worked since March you know, so we'll see how it goes. I worked 6 hours today and didn't break either of the machines I work on, impressive indeed. Well anyway, once I got home today, the nursing agency called to say they have coverage for a few more shifts. I don't expect them to fill every shift every day, but I think they can do better than not even half, right? So, get back to work, check. Getting extra nursing hours, check. Sweet!

Colby's birthday party plans are in full swing, and that makes me happy, oh so happy!! Can't wait for Colby's big day when he turns the big 1-0!! Makes me gush with pride every time I think about that little, or should I say big, stinker turning 10. He's been through so much and I'm so very proud of him. Gushing, ecstatic mama making big birthday party plans, check.

Still lots to do around here until I feel "normal" again, but I feel pretty darn accomplished at the moment. Love getting items checked off that never-ending to do list. Just wanted to let everyone know we're hanging in there. And for the 1st time in quite a while, I feel like things might just be ok one of these days. Time to get Colbster off to bed, then off to bed myself.