Saturday, July 7, 2012

TO-DO LIST IMPORTANT; NOT-TO-DO LIST ALSO IMPORTANT

What am I going to do today? I'm not sure, but I know what I'm NOT going to do. For example:

I'm NOT going to make phone calls regarding supplies. When will we get the supplies I ordered? Why did you send the incorrect supplies, again? Why did you only send this many instead of that many? When will someone pick up these wrong supplies, they're blocking my hallway? Did you get the paperwork you needed to get the supplies? Also will NOT make phone calls for upcoming appointments and followup calls to last week's appointments.  

I'm NOT going through paperwork/mail. I spent almost 2 hours doing that the other night. I at least went through and pulled out the bills that needed to be paid and forms, information I need to work on in the near future. Just not today.

I'm NOT stepping outside unless it's absolutely necessary. Freakin' heat wave has everybody in a bad mood, understandably.

As for my to-do list for today, it's negotiable at the moment. Of course there's taking care of Colby, which is 100% non-negotiable. He's back there doing his shaky vest right now. I know his dresser needs to be cleaned off and organized. That's a fairly easy chore, so I WILL do that. I MIGHT program some more cool stuff on his eye gaze. I MIGHT clean out his toy box. I MIGHT pick out a new book and started reading it. I MIGHT work a puzzle. I MIGHT work on b-day party plans. I MIGHT bathe today, haha.

What I WILL do is take a moment to thank everyone for the continued love and support you give to Colby and me. Some days dealing with the complications of SMA is so overwhelming it's hard to focus or know where to begin. But you all un-complicate things with your phone calls, texts, Facebook posts, visits, offers to help, etc. Right now my peeps, along with the fact that we are NOT in the stinkin' hospital at the moment, are the good areas I need to focus on when I feel those sinking, chest-tightening, I-can't-do-this-one-more-day feelings. And yes, we super mamas feel that way sometimes.

Time to finish Colby's morning routine. I sincerely want to THANK EVERYONE for hanging in there with us and supporting us through the last few months. Let's face it, the last year or so has had some rather sucky moments for both Colby and me. But I WILL try to focus on the good, i.e. family and friends who love and help us whenever possible. That's the good stuff and I WON'T forget it, I promise. 

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