Finally wising up and I'm blogging before I put Colby to bed, not after. What's new with us? Lots!
I worked last Friday at the hospital. Didn't break either of the machines I pack on, however, somehow my printer was jammed. The old take the paper tray out and stick it back in trick didn't work. And of course I'm hooked up to only 1 printer in the entire hospital. They eventually had to call in someone from IT, but by golly, it's working now.
Sunday was Colby's super duper 10th birthday bash. One word sums it up: FABULOUS!! Or maybe stupendous is more fitting. Maybe awesomely awesome is a more appropriate description. You get the idea. We had a great turnout, around 65 of Colby's closest family and friends. We had tons of bright colored decorations, balloons, Spongebob paraphernalia, a cake with Colby's pic on it, cupcakes, appetizers, drinks, treat bags, the whole shebang. My BFF Amy and her daughters made the sweetest video of Colby. I've watched it every day since then, more than once each day! It's so fun to see all that Colby has done and accomplished over the years. This birthday was a biggie. For an SMA Type I child to turn 10 is nothing short of miraculous. And after the bullshit that Colby has been through over the past year, he deserved the biggest, best b-day party we could pull together. We've been opening a few gifts and cards each day. Might as well celebrate for a birthday week, right?! So far his most interesting gift has been the hermit crab that his babysitter got him. It's yellow and has a Spongebob painted on the shell. So now I guess we're officially pet owners haha.
I'm working at the hospital Monday through Friday this week. Took 3 nurses and some schedule juggling, but we finally got enough coverage for Colby so I could go work my hours. I was working late last night, it was about 9:00, and guess what? Oh yeah, you know it, broke the damn overwrap machine. I swear I have no idea how I did it. Nothing special or weird happened. I just changed the bags, which I have to do all the time when packing on that machine, and somehow things got really screwy. So I pulled the old turn off the machine, then turn it back on and try it again trick, that didn't work. I tried cussing at it, that didn't work. I tried calling my boss and having her talk me through fixing it, that didn't work. Luckily she had to stop by work to meet with our big time boss. Long story short, the stupid overwrap machine is fixed. I hate that freakin' thing, I really do. I call it The Beast, and in the 3 years I've worked there, I've yet to tame it!
I needed to make phone calls when I got home from work today, but just couldn't bring myself to do it. Just too tired today. Working and partying like the rock stars we are has finally caught up with me. Getting ready to put Colby to bed and I'm not far behind.
Short-term plans for around here: reorganize/redecorate Colby's room. Order Colby's new power wheelchair. Get Colby back in school. Find more nurses to fill Colby's shifts. Colby has an appointment in Cincy first week of August (follow-up pulmonary and new appointment with endocrinologist/bone clinic). I have dr. appointment in mid-August with my radiation oncologist. Will schedule 2nd body scan then I assume. Start looking for another van.
Long-term plans for around here: we don't do those because life is just too dang unpredictable sometimes.
Time to get kid off to bed. If you came to Colby's birthday party, hope you had fun. I know Colby did and I was soaking up every minute of the celebration. Can't believe Colby is 10 years old! Have I mentioned that's a really, really, really BIG deal?! Because it is, what an amazing boy he is. Love that sweet boy to the moon and back!
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