Wednesday, November 7, 2012

JUST A LIL OLE UPDATE FROM LIL OLE ME

Glad to report a good week around here. Colby was off school Monday and Tuesday. Of course Tuesday was Election Day. Not really sure why he was off Monday also, but whatev. I woke up early, around 6:00, and started cleaning, cleaning, cleaning. Still had only half of my summer and winter clothes switched out, but that task is done now. Monday we had a nurse during the day. We gave him a haircut and bath. Colby had a bunch of supplies ordered. The apartment was really dirty, so it got a good scrubbing. Tuesday Colby and I took it easy, hung out around here. My mom came over and stayed with him so I could go vote. He's been doing great on his eye gaze. He's really exploring through the pages/options. He keeps saying things like "I could, could I" or something totally odd like "photo album". Hilarious. Then he'll go to the clothing page and say "jeans". One time I was in the kitchen and I heard him choose "bowling shoes". Really, Colby? WTH? Then one day he said "change me". Finally!! This is the kind of stuff I want Colby to say. What he needs, what he wants, etc. I kicked it into high gear. I said you want changed, by golly you'll get changed. He really wasn't that wet or dirty, but he said change me, so I changed him.  

Colby's numbers (oxygen saturation and heart rate) have been excellent the last couple days. I mean, like, kickass excellent. He's been able to stay off his vent for over an hour. Today he used his PMV for over an hour, and he's not a fan of that thing. He had an excellent day at school. I had to work. So nice not to get those Colby-is-having-trouble-breathing phone calls. He was due for a trach change today. I handled it with ease and precision, of course. Ain't nothing but a thing now.

Guess that's it for now on our end. Colby has school tomorrow, and I have some errands I need to run. Talked to the shelving system dude and not this weekend, but next weekend we're getting the shelving installed in Colby's room. There's a lot of work to be done in his room between now and then. Then as soon as that's done, the van shopping will start. Good thing, because the lift in the van is being extremely uncooperative lately. I think the hydraulics are going out in it again, and I'm just not paying to have it replaced. Time to replace the Terdmobile. Can't believe I'm saying that, but yeah, it's time.

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