Who cleaned the apartment (well, a lick and a promise), made a 3-layer carrot cake with glaze, got Colby up (including trach care, feeding and range of motion exercises) all before noon? That would be me, super mama! It's okay, you can bask in my awesomeness, I'm used to it. This morning I had the timer set on the stove for the cakes, then had the stopwatch running on my cell phone for the IPV cycles with Colby's cough treatment, all the while getting phone calls and texts. It was domestic chaos, and I was loving every crazy second of it. Hanging out with Colby, cooking in the kitchen, I was in my element. Still have to frost the cake and make the orange salad for Turkey Day. Of course I also have to go Krogering to get the orange salad ingredients. Woopsie, forgot those items on my grocery list when I went to the store, just 3 freakin' days ago.
So the good news is Colby's shelving system is installed and it is fabulous, wonderful, super-duper, everything I wanted it to be. The bad news is it was a complete cluster…mess around here on Sunday. I'm not sure why the guy wanted to install the shelves on Sunday, but he did. Heck I don't care, just get it done. I was told 2 weeks ago by the owner/sales dude when this appointment was set up that the install dude would be here between 9:30 and 10:00. Cool. So I get Colby up at 7:30 on a Sunday morning, drag his butt out to the couch by 9:00, then we sit. And sit. And wait. And wait. No install guy. Long story short, he chose to do another job first and didn't get to the apartment until 3:40 p.m. Then he was here until 11:00 that night putting up the shelves! Can you imagine how pissed, how really, really pissed I was by the time he left?! Colby had to stay on the couch that night and there we were with all his equipment setting around on the floor. So frustrating! But I love the shelves. Love, love the shelves. Don't have them arranged exactly how I want, but it's so much better than it was getting that big furniture out of Colby's room. Still need to steam clean Colby's carpet and also get a swing arm/mount for Colby's TV. Right now he's having to watch his little portable DVD. I think Santa is bringing the TV mount early.
The plan for us for Thanksgiving was the same as it has been for the last couple of years. Colby had school Monday and Tuesday. We were going to leave Tuesday after school and go to my aunt and uncle's for a few days. I love spending time with my aunt, getting in the kitchen with her and cooking. We were going to come back Friday because I'm working this Saturday at the hospital. Yep, that was the plan. But anyone who knows us knows our plans often get changed, whether we like it or not. The van is still not 100% fixed I don't think. Nobody can find anything wrong with it, but trust me, it's not running exactly the way it should. So there was that to think about. Then I get a call from Colby's nurse at school yesterday. He had a blood/mucous clog in his trach and they had to do an emergency trach change. Well, that was all she wrote for me. No way was I going to travel with Colby, alone, 1.5 hours away, with a van that may or may not be running right, hoping and praying that we got there without Colby's trach needing attention again. Couldn't do it. So I told my aunt we would just come up for the day on Thanksgiving and that way Dad could travel with us. I hated doing that. Absolutely hated it. Had to have a little pity party/cry fit that we weren't able to go. Not to mention that I already had the van 3/4 packed. Grrr. Sigh. But eventually I decided it is what it is. The bottom line is Colby and I will be celebrating Turkey Day with our family. I'm thankful for that, even though it's not how I originally planned. If it's one thing SMA has taught me, it's flexibility in that the plans you planned may end up changing, and you can plan on making a new plan to the plan.
Colby is sitting up in his chair watching some TV. He just got done with eye gaze. He actually went to the medical page and said he needed trach suctioning. That's so great! I went over and immediately suctioned his trach. He also said all kinds of other goofy stuff, but when he specifically asks for something to meet his needs, he's going to get it from Mama. Time to put the cream cheese frosting on the carrot cake. Going to try to get it all on the cake and not in my belly. Not making any promises though, haha.
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