NOTHING AND NOWHERE

That's exactly what I want to do and where I want to go tomorrow. Been sort of crazy and nutty around here for the last couple of weeks, so a lazy Friday is in order for us. Yesterday was Halloween of course. I wasn't thrilled with his costume choice, but I must admit Colby was right. He made an awesome zombie! Now, when you have an SMA child you can't just buy any old costume and think it'll work. Oh heck no, nothing is ever that easy here in SMAville. One-piece costumes are a no-go. Masks are usually a no-go. Bulky, heavy costumes are a no-go, etc. This year's getup was truly a joint effort. Colby said he wanted to be a zombie. His daddy got the costume. Colby's nurse and I did the zombie makeup. They had a big party at his school, complete with trick-or-treating at each of the classrooms. The staff really work hard to make it special for the kids. The office staff dressed as the Scooby-Doo gang, good stuff. When Colby got home from school, we did our normal routine, eat at 2:00, IPV and cough treatment at 3:00, then hit the road at 4:00. Went to Lexington and went trick-or-treating with Colby's friend Dani. Had a great time! Their neighbors were the best. So sweet to the kiddos and they were handing out regular-sized candy bars! And lots of them! None of those sissy fun size or bite size. I would call it another successful Halloween. I can't give my kid a big fancy bedroom with a ceiling track lift system and roll-in shower. But by golly I can give him FUN and give him some wonderful memories.

I was worried about Colby going to school today. Okay, I worry about him going to school every day, but today especially. He fell asleep on the ride home last night and I thought he was just going to be too darn tired to make it through his school day. No problems, he did just fine. When his nurse gets here we're going to give him a bath, then he's going to bed early whether he likes it or not. I'm super psyched because the CMA's are on tonight. Looking forward to watching.

Hey, guess what I'm doing? Laundry. Yeah baby, the washer is fixed. Tonight agenda is to put away the clean clothes I washed when I was over at my mom's. Yep, still haven't gotten around to that. Also going to do at least 1 more load of laundry. Today is the 1st day of the month, so that means changing out Colby's tubing, filters, etc on all his equipment. Before he left for school this morning I did the backup suction machine and cough assist. That leaves both Trilogy machines, humidifier, IPV, suction and cough assist in Colby's room. Dang, the nurse tonight is going to earn her pay! Speaking of laundry, it's spinning out and needs to be put in the dryer. One load down, one to go. Hope everyone had a safe and happy Halloween. FYI, Turkey Day is only 21 days from today. Holy freakin' crap where does the time go?!