BUSY DAY - SWIMMING, PORT FLUSH, UNWANTED CALLS

One of these days I'm going to blog and say hey, everything went just fine today. No nursing issues, no medical issues, no Apria issues; it was a zippity-doo-dah kind of day.

Well, today is not that day. Actually, yesterday was a pretty darn good day, so I can't complain too much. I got a lot of stuff done at home while Colby was at school - errands, phone calls, laundry, etc. I went and had dinner with one of my favorite SMA mommy friends. She is a hoot, and we always have a great time together. Get us away from our kiddos for a couple of hours, no telling what will happen. But we were very well behaved, for the most part, from what I remember. Just kidding. Sort of.

Okay, here's the poopy part of the week so far. I'm supposed to talk to a specific person at Apria to order Colby's supplies. You know, to make the ordering process easier and free of errors (note sarcasm.) I've called my person and left voice mails both yesterday and today. Still don't have those supplies ordered. Whatever. Oh yeah, this is making the ordering process so much better. Maybe she'll call me tomorrow when I'm at work and we can play phone tag all week long. Sounds super fun, doesn't it?  

Then today I get a call from Cincinnati Children's. NOT the call I was waiting for, saying to bring Colby on up early for surgery. This chick from Neurology calls me and says ummm, Colby hasn't been cleared for surgery from Cardiology. I said ummm, what the crap are you talking about? Colby had an Echo and an EKG done, which were perfectly normal. According to the ortho surgeon's nurse, Colby was cleared for surgery weeks ago. She said well let me check on it. Long story short, we're going to Cincy next week to meet with Cardiology. She apologized over and over, saying it was totally Cincy's fault. She's so sorry, blah, blah, blah. Yeah well, sorry don't sweeten my tea, honey. Am I pissed off to no end? You betcha. Is there anything I can do about it? No. Should I just suck it up, deal with it, and move on? Yep. So that's what we'll do. But I'm still very pissed and upset about it, and I'm pretty sure it's going to stay that way.

But you know what always makes it all better? My sweet boy Colby Michael. He makes my good days better and my bad days bearable. We took him swimming today. I love watching those skinny little legs of his kick around in the water. I know that has to feel so good for him. Then when we got home Walgreen's Infusion came out and did his monthly port flush. When the night nurse got here we gave him a bath. He's so stinking cute. His school nurse said he was driving a lot at school today. Just when I thought he wasn't able to use that switch anymore, he's been doing better with it lately. NEVER count that boy out, that's for sure. He only has 3 days of 6th grade left. Wow, I'm not kidding, this school year has flown by.

Guess that's it for now. Colby's nurse just got done with his night routine. My SMA mommy friend gave him some Captain Underpants books. I'm anxious to see if he'll like them. We finally got The Hobbit read, so now it's time to move on to The Hardy Boys, Harry Potter or maybe Capt. Underpants. Who knows which one Colby will choose. Stay tuned to see which one.