FOUR HOUR DRIVE - 15 MINUTE APPOINTMENT - LOVE IT

Well, today was a total waste of time and effort. We (my dad and I) took Colby to Cincinnati Children's for his cardiology appointment. It went exactly as I knew it would. We drove 2 hours to the hospital. Spent maybe a total of 15 minutes in Cardiology. Loaded Colby back up in the van and drove 2 hours home. The cardiologist walked in and asked if I had any questions. Uh, no, or I would have asked them weeks ago. We undid Colby's back brace. She listened to Colby's heart. Then she said she reviewed the results of his Echo and EKG. Everything looked good, she would clear Colby for surgery, and we were done. Dad didn't even have time to run down to the cafeteria and grab a sandwich. I'm trying to stay positive. The good news is there is nothing wrong with Colby from a cardiology standpoint. Never has been. The good news is we are one step closer to getting this surgery over. The good news is my dad and I took Colby up there and back with no problems. The good news is I didn't throat punch anybody over having to go to this stupid fucking appointment today. Oh yeah, the good news runneth over.  

Colby is officially on summer break. Can't say this summer is going to be a barrel full of chuckles, but I'm sure he's happy not having to get up at 6:50 to get ready for school. He's been driving me crazy with his eye gaze lately. All he wants to do on it is change channels. Channel after channel after channel. Beep after beep after beep. Oh well, no use in pressuring him into doing something he doesn't want to do, like use the eye gaze for actually communicating his needs/wants. Guess he'll do that one day when he's darn good and ready.

The nursing situation has been interesting around here lately. Since the first week of May, we've had 4 new nurses. One nurse went to school with him. She doesn't work for the nursing agency we use at home, so she's not taking care of Colby anymore. Strike 1. We've had 3 new nurses here at home - 2 of them are working out nicely. The other one was not reliable and brought way too many of her personal issues into my home, so she had to go bye-bye. Strike 2. I hate it for Colby, absolutely hate it. It's stressful for me meeting and training new nurses, but I can't imagine how Colby feels with all these different people taking care of him. So now we have 5 nurses working for us. Hopefully they'll all stay with us for a while. Please, dear Lord, just let them stay around a while. I'm here to tell you, the grass is not always greener. You think, oh, if Amy and Colby had nursing help, their lives would be so much easier. Wrong! Well, somewhat right and somewhat wrong. We've had many issues over the years with the nursing agency and miscommunication, along with some real cra-cra, incompetent, unreliable nurses. But then again, we've had some really good ones. The bunch we have now, they're good.

Last Saturday was a great day. I went for pedicures and lunch with my BFF. We've been trying to do that since her birthday, which was the first week of March. So nice to get away and have some girlie time. Then we had no night nurse, just Colby and me. We started watching The Hobbit. Nobody told me that stinkin' movie is almost 3 hours long. Good grief. We watched about an hour and a half of it. We watched some more of it tonight. Maybe the 3rd time will be the charm in getting it watched.

That's our update for now. Tomorrow we (new nurse and I) take Colby to his pediatrician here in town. He has to fill out some pre-surgery form for Cincinnati Children's. I have a whole binder of info I need to read to get ready for surgery. Haven't started that yet. Me? In denial? Perhaps. Don’t judge me. We've waited and waited for this surgery date to roll around. Now it's here and I'm in complete freak out mode. But tonight I'm also in complete sleepy mode. Going to tuck in kid and get some sleep. Good night blog readers.