IT'S FINALLY FRIDAY - WOO HOO AND YEE HAW

Colby has this reoccurring spot on his left ear. Most of the time it just looks like a callus. Every now and then it looks like more of a bed sore. It'll get bigger, goopy, open, nasty. I know, TMI. Well, you guessed it, the goopy nastiness is back. Popped up several days ago, and I've been freaking the freak out ever since. If Cincinnati thinks it's significant, Colby's surgery could get cancelled due to his history of MRSA. We've been religious about cleaning it, putting medication on it, trying to get it to heal. It looks much better, but we only have 3 more days before we head to Cincy Children's. Is there a patron saint of ear sores?! We really, really, really need that thing to clear up completely before Tuesday.

I've been trying to have positive thoughts about this surgery. First of all, thank God for Cincinnati Children's Hospital. I know sometimes there are still screw-ups, but there is no other place I would want to take Colby for treatment/surgery. Another good thing, Colby will be a one-and-done. One spine surgery, not multiple surgeries/lengthenings. So that's another positive, right? I have super fantastic parents who will be there with us every step of the way. I hate dragging them through all this, but sooooo thankful they're willing to help. I couldn't imagine sitting in that hospital with Colby by myself for days at a time. And with any luck, Colby will be able to get rid of that stinking heavy, uncomfortable back brace. That will be a huge plus. Last but not least, I've had wonderful support from other SMA patients and parents who have been through similar surgeries. Wanted to give a shout out Thank You to all the SMA mommies who have given me information and shared their kiddos' experiences. So yes, I'm a complete nervous wreck. I'm scared something will happen and the surgery will get called off. I'm scared of Colby getting some nasty infection, C-diff, pseudomonas or some other nasty hospital bug while we are there. I'm scared of the pain he will experience during recovery. However, I'm trying to also find the good/benefits in all this. Trying, really trying.

Speaking of spine surgery, the ortho nurse called today. They've moved Colby's surgery time from 11AM to 9:15AM. That will matter to the people who are travelling up to be there during surgery, but really doesn't affect Colby and me. We have to go up on Tuesday so we'll already be there. I think it's good they've moved the time up some, less waiting around on the morning of. See, another positive.   

I managed to get through working 5 days in a row without breaking a machine or having some sort of meltdown while in my office. I should get a smiley face sticker for those feats, since I usually manage to do both. But I kept my cool, stayed focused, and packed pills like a mad fool. Not sure when I'll be able to get back to work. It'll all depend on when we get home from the hospital and how Colby's recovery is going.

The nurse just got finished with Colby's night routine, so I'm going to read to him for a bit before it's sleepy time. Our latest reading adventure is a Hardy Boys mystery. I'll text later in the weekend and let you know if my nerves are still holding up. I'm thinking no, but we'll see. Tomorrow we get to sleep in and I can't wait. Sleep in goooooood and we better get all we can in the next few days, 84 hours to be exact, not that I'm counting.