Colby had a fabulous night and is also having a fabulous morning. I really liked our nurse and respiratory therapist last night. They made sure Colby got his feedings and respiratory treatments on time. I totally understand that not everything Colby needs can be done exactly on time by them. They have other patients. I get it. But they have to understand I run a tight ship, haha, and when Colby needs respiratory treatments every 4 hours, he is to get them every 4 hours on the dot. It's no big deal. If they aren't in here in time to do the treatments, I start them. This morning everyone disappeared on me. No nurse, CNA or parent to be found. No big deal. I did Colby's g-tube care, trach care, changed him, washed his face and brushed his teeth on my own. When I think Colby needs something, he's going to get it, whether I have assistance or not. He got his first feeding at 11:00 and he's due for a respiratory treatment at noon. Just enough time to come down and blog.
I can tell Colby is feeling much better. He is alert, not sleeping as much and jabbering LOUDLY. Very loudly, and that's even with 2 mL of water in his cuff. I told him this morning there was no doubt in my mind he was going to win the Loudest Kid on the Unit award. His oxygen levels are fantastic on room air and his heart rate is staying nice and steady. His blood pressure is up again this morning. Are you kidding me, kiddo? But that's what I expect when Colby is in the hospital. I hope the day brings more improvement and comfort to sweet boy. He needs it and certainly deserves it!
I can also tell the attending doctor and I are going to disagree on when Colby gets discharged. Now, I don't want to rush anything. Last thing I want is to take Colby home before he's ready, then him have a setback and we end up back here. But then again, we're over this place. So over it! What I thought would be an easy 3-4 day stay is now going on day #8. We need to be home. But I think the attending wants to wait and maybe get Colby a sleep study scheduled one day next week. I know he needs one. He hasn't had one in a long time, and obviously Colby's vent settings need some adjusting. He also said something about waiting until Colby's IV antibiotics were done before going home. I was quick to point out that shouldn't keep us here. Colby has a port and can get his antibiotics at home. So we'll need to get another chest x-ray to see how the collapse issue is going. The attending said he hasn't decided whether to get that tomorrow or Monday. Shit, I just want to get my sweet boy home. That's really all I want right now. Oh, and some chocolate cherry Bailey's. Can't lie, I want some of that very badly right now also.
This weekend is Colby's fall break and we were supposed to be doing some day camping with Grandma and Grandpa Kenny. It kills me we're not getting to do that. I want to go work my job, decorate for Halloween/fall and spend time with my friends. I want Colby back home in his own bed with the nurses he's used to seeing. I debated on whether or not to bring up Colby's eye gaze. I didn't. I already had all his medical equipment, plus our overnight bags to bring with us in the ambulance. With the eye gaze you also have to bring the charge cord and the stand. Too much. So if we're going to be here another 4-5 days (the thought makes me throw up in my mouth a little) do I have Mom bring it up Monday or not? Decisions, decisions.
Trying to figure out what to do with the day so I don't go completely out of my mind cray-cray from boredom. Probably wouldn't kill me to step outside this hospital and go for a little walk. As long as I stay on the hospital campus, of course. This is not exactly the best part of town. Watch some college football I suppose. Read some of the book I brought. Give Colby lots of PT and we can read some of his Harry Potter book. Need to go through all our stuff and get it better organized. Yesterday when we thought we were going to the PICU, we were throwing stuff in bags right and left quite hurriedly, so everything is totally unorganized. Took me about 5 minutes to find my freakin' toothpaste this morning. And who knows, I may even blog again. Happy Saturday everyone. Get out and enjoy it if you can. Sure wish we could.
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