Monday, October 6, 2014

MONDAYS SUCK, THIS MONDAY IN PARTICULAR

Wow. Just wow. Today has turned out to be a real WTF kind of day, that's for sure. Colby was supposed to have a 6AM x-ray, or at least an early morning one. Someone, again, forgot to put it in as a portable x-ray, meaning they come to Colby's room and do it while he remains in his bed. That had to be worked out. The nurse was really busy this morning, so I did all of Colby's morning care. No problem. I'm used to that by now. In rounds we planned on going home tomorrow. At least that was the plan originally. So then I'm talking to my mom on the phone and dad is here with us. Basically I told Mom she should just stay home. Why come up here for less than 24 hours, right? But we had to make some arrangements because Colby needed his feeding supplies from home and I needed a prescription, both of which Mom was bringing up today. Got that worked out. Dad left to meet someone halfway to get that stuff. Oh wait, first he had to go down to the Concierge Department early today and get me a couple of things. They help you run errands, get things you need while you're here and can't leave your kid, etc. This service is a Godsend! They put your credit card number on file and charge you for the things they get for you. My phone charger bit the bullet last night. I knew it was only a matter of time, and of course it happens while we're here. Also needed stamps because I have bills to get paid, like 3 days ago. Poor Daddy, he has run around everywhere for us today. Oh wait! But it gets better.

The x-ray at 11:30ish did NOT look good. Colby's left lung is still partly deflated. Too deflated to take him home, that's for sure. We've been at this since Friday I think (my days are running together now) with no true success. We sure thought we had it licked. In rounds this morning, we were planning for discharge for tomorrow. After the x-ray, discharge cancelled. This is turning into such a crock of bullshit. So the NEW PLAN for tomorrow is to do a bronchoscopy. We're on the add-on list, which makes me nervous. Been there, done that and basically we're at the bottom of the totem pole. It's supposed to happen sometime between 7AM and 11AM. Don't know what else to do at this point. We've tried around the clock respiratory treatments, every 4 hours for days now. Also tried hypertonic saline, positioning, increased pressures on Colby's vent. So bronchoscopy is next.

I could lose it. I want to grab someone, anyone, shake and possibly throat punch them and say FIX MY KID!! You're the experts! You're one of the best hospitals in the country. FIX MY KID, AND FIX HIM NOW!! We've had wonderful nurses, doctors and respiratory therapists, but enough is enough. I want my son better. That's it. That's all I want. For my sweet boy to get better and we get home.

I decided today once we do get home, Colby is on lockdown. I'm not taking the chance of putting him, my parents, or me through this shit again. No more school for Colby until spring. Home hospital instruction it is. I'll work very hard to make sure Colby doesn't just lie in bed. I can get history books from the library. We can do lots of things on his eye gaze. He can have visits from the high school students a couple days a week like he had been doing. I'm sure if I try, I can find many ways to keep Colby entertained.

If nothing else, today has gone by very quickly. The first time I looked up it was 2PM. How time flies when your day becomes a complete clusterfuck. Time to head back upstairs and see if kid has had his 5PM feeding. I'll blog after the bronch tomorrow and let everyone know the latest. Bye for now.

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