Continued improvement. That's the way, uh-huh uh-huh, we like it, uh-huh uh-huh. Talked to the attending doctor today. Do we have a big master plan? Not really, but here's what we're going to do today. Tweek Colby's vent settings some. Try to bring them down from when we put them up to get Colby's lung re-expanded. Take a chest x-ray in the morning. Hopefully that lung is re-inflated. Then we can start talking discharge and HOME. I swear I'm not telling anyone when we're going home this time. Last time it was such a bummer having to come back and say, nope, new plan, NOT getting discharged as we thought. Nah, I probably won't really do that. Because once we start planning for discharge I get really, really excited and it's hard to contain myself. Colby is as sweet and adorable as always. Jabbering away. Melting everyone with those beautiful brown eyes. How lucky am I to be that boy's mama?! Just want to get us back to the Ville where we belong.
Our respiratory therapist (RT) walked in last night and I thought, oh holy shit, you have GOT to be kidding me. You remember last hospital stay, I got into it with an RT? Colby was struggling and I didn't think she was moving fast or doing enough? Then I said we need to change his trach, immediately. And she said okay, but I have to call the attending. I about flipped my lid. I said you call whoever you want, I'm changing out Colby's trach NOW, get out of my way. Well, our RT last night was her. But you know what, everything was fine. I was watching her like a hawk, and she knew it. She did a very good job with Colby's treatment. We even worked together to do Colby's trach care last night. See, I can play well with others, sometimes, if absolutely necessary.
Who has two thumbs, is tired and grumpy, and needs an attitude adjustment? This gal right here! Everyone and everything is on my nerves today. REALLY on my nerves. I know that's the wrong attitude to have. Colby is exactly where he needs to be, and the people around me are just trying to help take the best care of him possible. But I also can see us getting home soon, and once Colby reaches this "it won't be much longer" time frame, I get antsy. But then again, we had discharge planned and then Mr. Pneumonia collapsed his lung! So I need to calm myself down. Tell myself things are getting better and things really could be so much worse. To kill time yesterday, I went through the text messages on my phone. Deleted over 100 old, unnecessary texts. Today I'm going to watch football - Go Colts!! - and read my book. I started this book when Colby was having his trach surgery over 2 years ago. Probably about time I got it finished. Try not to eat my weight in sweets and comfort food. Already have fresh fruit and yogurt waiting for me for lunch.
Thanks everyone, again, for staying in touch. I really, really mean it. THANK YOU so much for caring and supporting us through this unpredictable, often not-so-fun SMA journey. I'm grateful for all the support and prayers you send us not only when Colby is in the hospital, but every day. Mwwwaaaa, big kisses.
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