Friday, October 3, 2014

THIS CHILD IS DRIVING ME CRAY-CRAY

Seriously, if you were to walk into Colby's hospital room right now, you'd never know the crap we were going through just 8 hours ago. His heart rate is perfectly normal, in the 80's and 90's. His temperature is perfectly normal, 37.0. His blood pressure is not only up, it's high again, like we're used to seeing when Colby is in the hospital. He's jabbering away, awake and alert, like hey y'all what's up. Let me just take a brief moment to shrug my shoulders, roll my eyes, and let out a ginormous sigh of relief. Don't get me wrong, I'm thankful for all of that. I just don't get this kid sometimes. Cannot figure him out. And it terrifies me how quickly he can go from good to bad, from bad to worse, from worse to shitty worse, then poof, from shitty worse to good again. I'm pretty sure when we get home I'm going to need some therapy. Seriously, after dealing with this SMA stuff for all this time, I'm probably well overdue.

So happy to report the update news is all good. The tests that have come back so far (urinalysis, blood gas, blood count) are all normal. Did I say that in my last blog? Sorry if I'm repeating. Running on fumes at this point. Colby is tolerating his feeds just fine, peeing and pooping just fine. And you know how important poop is in the TCC!

The plan from here: continue with respiratory treatments every 4 hours. Trying to get that left lung to pop open the rest of the way. Continue current antibiotics and wait for blood culture results - takes 36-48 hours. Adjust antibiotics if needed. The bronchoscopy has been put on hold for now, thank goodness. Did I blog that already also? Well anyways, just wanted to report that Colby is doing MUCH better.

There is no way I could thank each of you separately for all the wonderful calls, texts and Facebook posts. I'm sorry I haven't answered a lot of calls. Usually I'm busy with kid. He eats every 3 hours and is getting treatments every 4 hours, and I'm making sure that all stays on schedule. Plus there is changing him, turning him, talking with doctors and nurses, figuring out the next step, etc. My mom has gone home for a couple of days, and my dad is with us here now. Don't know when we'll get discharged. Can't really start talking about that now. Need to get Colby more stable and make sure none of this funny business happens again. What he went through overnight was horrible. But thank God we were here when it happened. What if we went home and his lung collapsed over the weekend? Can you say "disaster?!" Thank God the attending doctor just happened to be standing at the end of Colby's bed when Colby just happened to be getting his CoughAssist, and the doctor just happened to be paying attention and noticed Colby's left side not rising. I think we avoided even more trouble with that. So see, I can always, always, always find some good in a situation. That's because the love and support of my family and friends keeps me strong. Every time you all text or say, tell Colby we love him and are praying for him, I do. Thank you everyone. I feel like when we get home we all need to schedule a Group Hug Party. More soon.   

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