Saturday, October 11, 2014

DID I MENTION WE'RE SO VERY GLAD TO BE HOME?!?!



Good morning world and all who inhabit it! Yes, that is in fact, a Spongebob quote. But hey, if the shoe fits. We are continuing to slooooooowly get back to normal around here. Colby is staying on his extra medications - Xopenex inhalant, hypertonic saline, Tobramycin inhalant and Bactrim through Sunday. We're still doing respiratory treatments every 4 hours during the day and every 6 hours through the night (so we can get some freakin' rest). Then maybe, just maybe, on Monday we can do our normal routine around here. We've been building up an arsenal of medications to use in case either of us starts to get sick again. The pulmonologist prescribed 2 doses of Tamiflu. I'm also going to start taking Emergen-C. We have Colby's leftover Cipro drops should we need them. We'll also have leftover doses of the hypertonic saline and Tobramycin inhalant should Colby start to show "sicky" symptoms. But that's not going to happen, right? Neither of us is getting sick again this fall/winter, right? Great googly moogly, I certainly hope not. It's just been downright shitty around here since mid-September. But we're both better now and ready to get on with whatever it is we need to get on with.  

A good indicator of how Colby is feeling is his ability to sit up in his wheelchair. Yesterday was the first time since September 26 that Colby sat up. I would have been pleased with 20 minutes or so. But Colby, being the rock star stud that he is, sat up for 52 minutes, no problem! Then his heart rate started to get a little wonky, so we laid him back down. Yep, Colby is definitely on the mend.

I have spent my days playing catch-up around here. Thursday I made around a dozen phone calls. No exaggeration. Still have three to make on Monday. Been trying to get caught up on some sleep. Yesterday I actually got a 45-minute nap while the day nurse was here. I zonked out! My bedroom is right across from the kitchen, so I had set the stove timer for 45 minutes. It went off and I was sleeping right through it. The nurse had to knock on my door and say, uh Amy, your stove is beeping.  Went through all the mail last night. With the help of the Hosparus nurse, got Colby's home/hospital papers going. Today I'm going to work on a grocery list. A good, COMPLETE grocery list where I won't be running down to Kroger every day because I forgot this or that.

Colby's nurse will be here at noon, and we're giving Mr. ColbyRuss HippiePants a much-needed hair cut and bath. He's about two weeks overdue for a cut, and his hair is looking nasty! I also need to run to the mall and pick up a couple b-day presents. Maybe try and sit Colby up again. Depends on how much time we have. Hoping for the same or better than yesterday. Also need to have a very serious discussion with Colby about Halloween costumes! We've been looking online for the last couple of weeks, but it's time to finalize the decision. What will it be this year? Frankenstein? Teenage mutant ninja turtle? Skeleton? Don't know. If he feels like it on Monday, the nurse and I may just have to run him out to Party City so we can get some ideas. As you know, we take our Halloweening very seriously around here.

Bye for now. Need to make my bed, unpack the dishwasher and make Colby's food for the day. Oh yeah, I probably ought to bathe today also. By then the nurse will be here and we'll get started on Colby's hair cut and bath. Love getting this stuff caught up and done! More soon, from my own computer in my own home, as I watch CMT on my own TV. What a wonderful thing that is, being HOME, even if it is this dumpy old apartment. Beats hanging out in that hospital room on the TCC any day, for sure!

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