Yep, Colby is moving right along. More progress in the right direction. We've bumped his oxygen down a bit more. He started at 30%, now he's at 24%. He only has to go to 21%, which is "room air" and will no longer need extra oxygenation. He would probably do fine if I went ahead and put him on 21%, but no need to rush. We've been able to stretch out his cough treatments. Instead of doing them around the clock every 4 hours, we're doing them every 6 hours. This is a great improvement and will allow Colby (and the rest of us) to get more rest. Seriously, my son is a kickass rock star stud! They have changed his Clindamycin to g-tube form instead of IV. Also the discharge nurse is working on a preauthorization for Tobramycin drops for when we get home. Apparently they are very expensive and need to be ordered from a specialty pharmacy. We also got his scheduled trach change done this morning and when I left to take a little break, Grandma was putting in a SpongeBob DVD for Colbster. I'm sure he's perfectly content with that.
We started to do a little planning for discharge. If Colby continues at this rate, we're thinking Friday or Saturday. Can you say YES, please and thank you. The only concern is transport home. We don't think insurance will approve an ambulance ride home, since Colby won't be in an "emergency" situation. That's a matter of opinion, but when it comes to insurance coverage, my opinion of course doesn't matter. So if we have to take him home in his wheelchair in the van, that will prove quite interesting. There is no way in the world he will be able to tolerate sitting up that long. We're going to try to sit him up in bed today. This will be the first time the kid has sat up in any way, shape or form since last Friday. And if you remember, that didn't go so well. I guess I'll worry about the ride home later. Right now just concentrate on Colby continuing to improve.
That's about all I know for now. My mom is here with us. She was supposed to bring up some yummy, healthy veggie soup they made, but the goofball left it at home sitting in the fridge. Dangit, Linda. Cafeteria food is expensive. My stupid, hacky cough has lessened considerably. We did a load of laundry this morning. I was down to my last pair of clean undies. Wish I could go back to the room, take a nap, and when I woke up we were home, getting back to our "normal" lives. Super thankful for this hospital, but so ready to get out of here. I guess I can't complain, though. This is the first respiratory illness Colby has had a hospital stay for since getting his trach in May 2012. Pretty impressive, sweet boy. Hopefully once we get home, we'll go another 2+ years before another hospitalization. Or 3. Or 4. Or 5 years, just sayin'.
Hope to keep the good news coming. Hope that I'm blogging from the Cincinnati Children's Hospital Family Resource Center just a couple more days. Bye for now, kiddos.
Rock stars making progress! I love it. So sorry I haven't been able to make it up. I had a lovely sleep study done last night. I didn't meet the criteria to be fitted with a mask last night. So I will probably have to go back again in a few weeks. Seriously?!? I snore like a freight train going up hill. I NEED a mask. More importantly, Matt needs me to have a mask. HA!
ReplyDeleteHope to see you soon sweet friend.